Negative and Offensive?

The comment suggested that I have been negative and offensive in my previous blogs and that I should concentrate more on how Charlie deals with his condition and not on my own difficulties adapting to them. If I am totally honest I found this really upsetting at first and sat re-reading my blog entries over and over and over trying to see how I had been offensive and self centred in my approach but all I could see was that I had been honest about my feelings.

Having a child with extra needs isn't something that JUST affects the child, but the whole family unit and beyond! Every single person involved with that child directly or indirectly will somehow be affected to differing degrees, so why is it so wrong to be honest and open and admit that it isn't always easy ? Why do some people in society feel that if you don't sugar coat things and wear the bravado that everything is fantastic 24/7 and that you are selflessly unaffected by things it is wrong ?

Of course the person is it hardest for is Charlie, and I would never take anything away from that and if I could have it all for him I would in a flash! but that doesn't mean it is easy for us as a family too and I don't see how pretending otherwise is ever going to be beneficial for him or us! When Charlie is older and we are talking about his conditions and how it was as a child I'm not going to lie to him and tell him it was a peice of cake and nothing major because it's NOT always easy and sometimes we do find it hard both physically and emotionally but if we are honest about that and deal with things in what I feel is a healthy way, by not brushing it under the carpet then I think it will help him to learn that it's ok to admit when things are difficult and therefore he will hopefully find it easier to accept the support and help that he might need.