TRIBUTES have been paid to a 15-year-old girl who has died after a long battle with a rare health condition.
Mia Loudon, from Cinnamon Brow, died in the arms of her loved ones at Claire House Children’s Hospice in Liverpool in March, having fallen critically ill in Alder Hey Children’s Hospital two days earlier.
The teen had been described by her mum Paula as a ‘warrior princess’, having endured serious health issues for most of her life.
As a toddler, she had been diagnosed with a form of Rett syndrome known as CDKL5 in 2005 – becoming only the 17th person in the world known to have the condition.
Paula said: “Sadly, Mia passed away in Claire House Children’s Hospice after becoming critically sick at Alder Hey on Monday, March 18.
“She battled hard but unfortunately went into multi-organ failure.
“The intensive care team at Alder Hey worked rapidly to get Mia to Claire House in time to get her settled at the place she loved to be and had many many years of fabulous holidays and family time.
“Mia sadly passed away peacefully at 4.30pm on Wednesday, March 20, in the arms of her mummy, daddy Rob and sister Amy.”
The youngster’s illness caused her to have seizures every day, while Mia was also unable to walk, talk or sit up.
In July last year, she was able to return home from hospital after nine months on the day before her 15th birthday.
Mia on her 15th birthday
A celebration of Mia’s life on Monday, April 8, raised a staggering £4,000 for charity.
This total will be split between Claire House and Ronald McDonald House at Alder Hey, with £2,500 going to the former and £1,500 to the latter.
Paula added: “We are eternally grateful to Claire House for the love they have shown Mia and us as a family over the past 13 years, but mostly for going above and beyond during the hardest and most painful time of our lives.
“The love and support we received was out of this world.
“We cannot thank them enough for all they did during that terrible time.
“They held our hand through the whole process and guided us with genuine love and empathy.”
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