THE parents of Adam Lewis who died suddenly at the age of 24 travelled to London to lobby parliament in a bid to ensure other families don’t suffer a similar heartache.

Kim and Peter Lewis were invited by the charity Cardiac Risk in the Young (CRY) to make the trip down south to encourage MPs to sign a pledge to support a national strategy for the prevention of young sudden cardiac death to help save lives.

Adam, who grew up in Old Hall, was 20 minutes into a flight to Barcelona when tragedy struck in June 2014.

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He died from sudden arrhythmic death syndrome – a condition his parents weren’t aware of.

Peter said: “The reason we accepted the invite from CRY is because we believe it definitely needs more exposure. People need to know more about it.”

Kim added: “For every 100 people questioned whether they would have their child tested there was a percentage of around the 25 per cent mark that said ‘no as my child is fit and healthy’.

“But 90 per cent of those who lost a loved one all thought they were fit and healthy. This is why we need to get the message out there.”

CRY is campaigning for a national strategy to ensure the guidelines and policies to prevent young sudden cardiac death are consistent. More here.

The first stage is to correctly acknowledge the incidence of these deaths.

Kim said: “We talk about 12 young people passing away every week because of this condition but in reality they think the figure is a lot higher.

“They are doing research trying to find out what that figure is as they feel it’s being downplayed.

“If that figure is significantly higher it’s shocking. The Government should have a handle on how many people it is.”

Kim and Peter have called on any families who have been affected by sudden arrhythmic death syndrome or anyone who has a story to share about the testing process to come forward.

Email theadamlewiseffect@gmail.com.