I haven't blogged for a while now, due to being absolutely mad busy ! Dad has been very ill with COPD and i've been going round there helping out , kids are also off on school holidays which naturally equates to both many more grey hairs and utter madness in the house ! ! !

Charlie is EVERYHERE now! Crawling and cruising like there is just no tomorrow ! This is where we are really learning how his visual problems are going to affect him ! the first 3 weeks of being able to crawl were spent with a constant bruise , lump , mark , or all of the above down the right side of his head and face ! he seems to find it much harder to see things on that side so consequently bumps into things. It took a few weeks but he now knows the outlay of our front room and avoids the majority of them unless hes having a very bad day with his eyes shaking more than usual ! But if we go somewhere new we have to watch him and be really aware of things he could bang into !

He is going to be 1 in a few weeks which is just UNBELIEVABLE! i can't believe how fast it has gone ! He is due an mri scan at 12 months ish so i am hoping we wont have TOO much longer to wait ! We know there is a brain abnormality but up until now we still don't know exactly WHAT it is . I think the majority think it doesn't matter to know so much so long as you know hes coping ok but it is to me , i need to know what it is in order to deal with that , if that makes sense?

It has been a long and difficult year and we have had a lot to take in about it all but he has just amazed and inspired us with the amazing way he has just adapted to EVERYTHING ! he does EVERYTHING he should be doing , just slightly differently ! - different is good !

He still HATES his glasses and we are having a real battle trying to get him to keep them on but i am sure in time he will get there !